I had the chance to do three free-writing sessions in the last week. Free-writing offers me an opportunity to be prompted by some brand new idea. It … [Read more...]
My Free-Write Life, Medical Update, & Blizzard Photos (all over the place, like me)
Facing Facts: Fear & Reality
July 5th, 2022 I was changing the kitty litter and saw a bug scurry out from under the box. The pinchers were huge and it startled me. I’m not a … [Read more...]
Some Days Are Just Hard
My July 1st outpatient visit was one of my rougher days to date and it was not because treatment was painful or intense but because the hospital was … [Read more...]
Medical Update: The Windy Path
I've not posted since late June and a lot has been happening. This is going to be a series of updates with free-writes and photos because I'm not sure … [Read more...]
Update & Free Write
A lot has been happening in the last few weeks. I came off the Regeneron trial one day and the next was talking to a radiation oncologist and … [Read more...]
REGN4018 Clinical Trial for Ovarian Cancer: Week 15 (Patient Perspective)
My cancer is back and while I was told I would be able to get the second immunotherapy drug, Cemiplimab, when I progressed, because the protocol was … [Read more...]
Murky Moment Update: Week 11 of the REGN4018 Clinical Trial for Ovarian Cancer
It's been 11 weeks since the trial started and unfortunately my CA-125 (a tumor marker) is rising AND I have a visibly enlarged lymph node in my lower … [Read more...]
Reflections on Coping: The 1st Six Weeks of the REGN4018 Clinical Trial for Ovarian Cancer (3 of 3 – April 2022)
April 2022 How many days did you think you might die during the trial?" my friend Kathy asked when we sat at a smoothie place seeing each other for … [Read more...]
Reflections on Coping: The 1st Six Weeks of the REGN4018 Clinical Trial for Ovarian Cancer (2 of 3 – March 2022)
March 2022 Worry spent hours with me at the hospital after being made to wait an hour, outside, in the cold, for visiting hours. Then, Worry and … [Read more...]
Reflections on Coping: The 1st Six Weeks of the REGN4018 Clinical Trial for Ovarian Cancer (1 of 3 – Feb. 2022)
These posts are excerpts from my free-writing, phone notes, and journal entries from the first six weeks of the REGN4018 trial. While my first posts … [Read more...]
REGN4018 Clinical Trial (Weeks 5 & 6): Plot Twist
I have felt physically better in the last week and a half than I have since starting the trial. That is a huge relief and I'm enjoying having some … [Read more...]