{"id":5496,"date":"2022-03-23T11:11:24","date_gmt":"2022-03-23T15:11:24","guid":{"rendered":"https:\/\/healwritenow.com\/?p=5496"},"modified":"2022-03-23T11:11:27","modified_gmt":"2022-03-23T15:11:27","slug":"regn4018-infusion-day-schedule-patient-perspective-from-week-5","status":"publish","type":"post","link":"https:\/\/healwritenow.com\/regn4018-infusion-day-schedule-patient-perspective-from-week-5\/","title":{"rendered":"REGN4018: Infusion-Day Schedule (Patient Perspective from Week 5)"},"content":{"rendered":"\n

Week 5 (Cycle Four) \/ Full dose (150 mg.) of REGN4018 as an out-patient (for the 1st time)<\/p>\n\n\n\n

Last week\u2019s treatment was held because of high liver counts and it was probably for the best because I also needed a blood transfusion and had an infection.\u00a0<\/em>So, even though it’s the fifth week I’ve been on the trial, it’s the fourth dose of medicine. For patients who might be in this trial (or those who love us), here’s a sample of what an infusion day is like:<\/p>\n\n\n\n

4:45 a.m.<\/strong> the alarm goes off. Let the dog out. Coffee. Get dressed. Feed cats dry food. Pack up infusion day bag with a blanket, medical devices (temp, blood pressure, and pulse ox to compare to hospital stats). Bring lemon for lemon water.\u00a0<\/p>\n\n\n\n

5:45 a.m.<\/strong> The Ride Arrives and bring me to the T (my brother usually takes me but I just got access to The Ride<\/a> and wanted to try it out as it\u2019s small vehicle transport for people who are disabled and in certain service areas)<\/p>\n\n\n\n

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Red line to MGH<\/figcaption><\/figure><\/div>\n\n\n\n

6:45 a.<\/strong>m. Arrive at MGH<\/p>\n\n\n\n

7:00 a.m. <\/strong>Termeer Infusion Ctr., get hospital bracelet, weight, and vitals.\u00a0<\/p>\n\n\n\n

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Clinical trial infusion place.<\/figcaption><\/figure><\/div>\n\n\n\n

7:30 a.m.<\/strong> See\/Meet Infusion Nurse for the day who gets port accessed and labs drawn from my seat in the short stay unit.<\/p>\n\n\n\n

8:00 a.m.<\/strong> See Dr. Penson about what\u2019s past and what is coming. He also checked for the large lymph node in my armpit. Instead of it protruding, he had to look around to find it (as did I).\u00a0<\/p>\n\n\n\n

8:30 a.m<\/strong>. Labs back and thanks to stopping Tylenol my liver counts returned to entirely normal so my treatment can resume. Thanks to last week\u2019s blood transfusion, my red counts are also up are follows:<\/p>\n\n\n\n